Practical Legal Research
Tools for the Paralegal, Advocate, and Attorney,
with an Emphasis on Web-Based Approaches
Prepared by: James R.Sheldon, Jr.
Supervising Attorney
National Assistive Technology Advocacy Project
Neighborhood Legal Services, Inc.
295 Main Street, Room 495
Buffalo, New York 14203
716-847-0650 (0227 fax, 1322 tdd)
jsheldon@nls.org
This article was originally prepared for the Northeast Regional Work Incentives Support Center at Cornell University's Employment and Disability Institute and is reprinted with permission.
Table of Contents
I. Introduction
II. Context for This Discussion
III. The Hierarchy of Legal Authority
A. The Concepts of Primary and Secondary Authority
1. Primary Authority
2. Secondary Authority
B. Examples: Legal Authority in Our Work
1. SSDI and SSI
2. State Vocational Rehabilitation Agencies
3. Special Education
4. Medicaid
C. The Legal and the Practical
1. Federal vs. state law or regulation
2. Primary vs. secondary authority
IV. Where Do You Find the Legal Authority for Your Work?
A. The Resources Needed and Those Available Will Depend on Several Factors
1. Your area of focus
2. The size of your agency and agency's budget
B. The Conventional Law Library
1. Statutes
2. Regulations
3. Court reporters - containing reported decisions
4. Additional library volumes
C. Special Library Volumes at a P&A Agency
1. Treatises from commercial vendors
2. Books, articles, and policy briefs from the public sector network
3. Loose-leaf services
D. Westlaw
E. Selected web sites
1. SSI and SSDI
2. Special education
3. Vocational rehabilitation
4. Medicaid
F. Using List Serves as a Research Tool
G. Using National and Regional Technical Assistance and Back-Up Centers
1. Regional technical assistance projects funded by SSA
2. National Back-Up Centers
H. Using Law Libraries Outside Your Agency
V. Application of Research Skills Through a Case Scenario
A. Case Scenario, Part I
1. The initial SSI questions
2. Researching the initial SSI questions
B. Case Scenario, Part II: Additional SSI Questions, a Medicaid Question
1. The questions posed by Myron and his parents
2. Case Scenario, Part II: Researching the issues
C. Case Scenario, Part III: Additional Medicaid Questions
1. What about Medicaid funding for a standing power wheelchair?
2. Researching the additional Medicaid questions
D. Case Scenario, Part IV: Eligibility for State Vocational Rehabilitation Agency Services
1. VR eligibility questions
2. Researching the issues
VI. Conclusion
I. Introduction
This policy and practice brief is targeted to individuals who work for the two primary advocacy programs now funded by the Social Security Administration (SSA): the Benefits Planning, Assistance and Outreach (BPA&O) and the Protection and Advocacy for Beneficiaries of Social Security (PABSS) programs. Originally, both programs were mandated to serve only individuals with disabilities who received cash benefits under the Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) programs. Now, with the implementation of the Social Security Protection Act of 2004, BPA&O and PABSS programs can also serve the following former cash beneficiaries: individuals who continue to receive 1619(b) Medicaid upon losing cash benefits because of earnings and individuals who received extended Medicare benefits after losing SSDI cash benefits upon performance of substantial gainful activity.
With the BPA&Os, the individual providing benefits planning services to beneficiaries typically works for a nonprofit agency and may be given any number of titles, including benefits advisor, benefits counselor, benefits advocate, or benefits specialist. In this brief, we will refer to this individual as a benefits specialist. Most often, the benefits specialist is neither a lawyer nor trained paralegal and has received no formal training in legal research. In simple terms, we are defining legal research as the search for government law, regulation, and policy that defines a person's rights.
With the PABSS programs, the individual providing advocacy services will most often be employed by an agency designated within a state as the Protection and Advocacy (P&A) program. Typically, the P&A program will be a nonprofit agency, but will, in some states, operate as a part of state government. With a PABSS program, the individual who serves the beneficiary may be an attorney, paralegal, or advocate. In this brief, we will refer to this person as the PABSS attorney or advocate. While the attorney is expected to have considerable skill in legal research, the expectations for the advocate may vary from program to program. On a practical level, frequently neither the attorney nor advocate will possess all the knowledge and skills to do legal research on the internet.
In the writer's view, the BPA&O benefits specialist and the PABSS attorney or advocate share the common need to be skilled in the methods of practical legal research. In the case of the benefits specialist, the reason for this need is so that the individual can look up the relevant law, regulation, or policy. Typically the benefits specialist will be looking for policies affecting SSI or SSDI benefits, enabling him or her to provide high quality benefits planning services. The PABSS attorney or advocate may be looking for similar SSI or SSDI policy in order to support an appeal before SSA, an activity now permitted by PABSS grant conditions if the issues are work-related. The PABSS attorney or advocate's research may also take them into the laws, regulations, and policy governing the Ticket to Work program. Since much of the PABSS advocacy is expected to be adversarial in nature, the fruits of the legal research will often appear in written arguments and briefs that will be presented to various decision makers, including administrative law judges, and state and federal court judges.
The purpose of this article is to provide a practical framework for all the legal research typically demanded of a BPA&O benefits specialist and a PABSS advocate. In doing so, it should also provide a good framework for most of the lower-level research that will be demanded of a PABSS attorney. This will not attempt to be a legal research treatise to be used by experienced litigators.
In the sections that follow, we will describe the sources of legal authority available, where you find them, and when it is appropriate to do legal research. Depending on the nature of your position, we will attempt to define what you need to perform legal research: on your bookshelf, through personal computer access, and in your office library. We will then go through when to access outside resources, including law libraries, public libraries, and back-up centers, including those funded by SSA. Finally, we will provide some tips for efficient use of these resources.
II. Context for This Discussion
In order to provide a practical context for this brief, in the discussion that follows we will focus on four substantive areas, all involving government-funded benefits, that will be commonly encountered when serving beneficiaries:
All BPA&O and PABSS programs will, at a minimum, deal with SSI and SSDI issues. At some time or another, they will also touch upon the other issues in varying degrees. The principles for researching issues involving these topics should have general applicability to other topics. In particular, since the four programs discussed are all operated through federal, state, or local government agencies, this discussion should have the most relevance when looking at rights within other government-sponsored benefit programs.
III. The Hierarchy of Legal Authority
A. The Concepts of Primary and Secondary Authority
At the law school or paralegal school level, students are taught that the body of law, regulations, policies, and decisions interpreting law or policy fall within a broad category called legal authority. Within that broad category things are then categorized as either primary authority or secondary authority. Students are then taught that primary authority includes things such as laws and regulations which are generally binding on the courts, while secondary authority includes things such as agency policies that are not binding on the courts.
When these same students graduate and begin working with real cases, they find that what they learned in school works exactly the opposite way when they are advocating for government benefits through program administrators. The "real authority" or the documents that administrators go by are the agency policies that are part of agency manuals which agency employees must reference daily. By contrast, the laws, regulations, and court decisions that our law professors and paralegal instructors told us were so important are rarely referenced by a local agency administrator.
What this all means for the benefits specialist or advocate who is looking to perform "practical" legal research is that many of the government agency policy manuals, i.e., what the legal scholars will classify as secondary authority, are more important to your day-to-day work. That said, it is still important to understand how all this fits into the American legal system.
1. Primary Authority
Primary authority is traditionally described as including the following:
Constitutions include such things as the right to equal protection of the laws, secured by the Fifth and Fourteenth Amendments to the U.S. Constitution, and the Supremacy Clause of the U.S. Constitution, generally requiring that federal laws and regulations on a subject be considered the final word as compared to state laws on the same subject. Statutes or laws are enacted by either Congress or the equivalent state legislative body. Regulations are generally written by the federal or state agency responsible for implementing the program in question.
Case law is only binding in the jurisdiction covered by the court in question. For example, the U.S. Supreme Court's decisions are binding throughout the country. Decisions of the U.S. Court of Appeals for your circuit are binding in states within that circuit (e.g., the Third Circuit's decisions would be binding in Pennsylvania; the Fifth Circuit's decisions would be binding in Louisiana). Decisions of your state's highest court, typically the state Supreme Court, are binding throughout the state. By contrast, an intermediate appellate court's decisions are only considered binding precedent for that particular jurisdiction of the state. Decisions of a lower, i.e., non-appellate court within the federal or a state's system (often referred to as a trial court) will not typically be considered binding on other lower courts, even within the same jurisdiction. What all this means is that the parties in a later case should be able to point to the binding precedents from appellate courts in support of a ruling based on similar facts. Of course, when the attorney is faced with a potentially binding decision that goes against the position of his or her client, the attorney will often argue that their case is just different enough that the decision in question should not be controlling precedent in their case.
2. Secondary Authority
Secondary authority is traditionally described as including the following:
Some may argue that policy manuals and other policy pronouncements from federal and state agencies amount to primary authority. It probably could go into either category, primary or secondary, depending on the context in which those documents will be considered by a decision maker. The more important question is whether the pronouncements made in those documents become binding on other decision makers, an issue we discuss below.
NOTE: We assume that we are only discussing "legal research" in the context of this handout. Disability advocates may find a need to also develop skills in researching medical issues or issues presented by other disciplines (e.g., special education theories, vocational rehabilitation theories). These very important areas of research are beyond the scope of this policy and practice brief.
B. Examples: Legal Authority in Our Work
Set out below are the four government benefit programs to be discussed in this brief. Under each we summarize the relevant primary and secondary authority governing each program. We then offer practical comments on when each form of authority will matter most.
It is worth noting that of the four, the Social Security programs (SSDI and SSI) are the only programs fully governed by a federal agency and subject only to federal law and policy (i.e., there is no relevant state law and policy). By contrast, the other three programs, vocational rehabilitation, special education, and Medicaid, are programs authorized by federal law but operated on a state and local level, with numerous state and possibly local policies coming into play.
We do not specifically list case law or court decisions under these four programs. For each program, case law would be either primary or secondary authority depending upon the court the decision has come from. Keep in mind that for SSDI and SSI, any court decisions would be from the federal courts. For the other three programs, the court decisions could come from the federal our state courts.
1. SSDI and SSI
Primary authority includes: Titles 2 and 16 of the Social Security Act, 42 U.S.C. '' 402 et seq. and 1382 et seq.; the SSDI and SSI regulations, 20 C.F.R. Parts 404 and 416; decisions of the federal courts. There are no state laws or regulations governing the SSDI or SSI programs, with the exception of state laws governing the amount of any SSI state supplement.
Secondary authority includes: SSA's Program Operations Manual Systems (POMS); Social Security Rulings (SSRs); SSA's Handbook; SSA's Program Circulars; SSA's Emergency Messages; the HALLEX (for cases decided at the ALJ hearing or Appeals Council levels); ALJ hearing decisions; and Appeals Council decisions. The hearing decisions and Appeals Council decisions are not officially published, but will often be collected by advocates for submission in later cases before the agency. They are not binding on the federal courts. The Appeals Council decisions, issued at the highest levels of SSA, should be binding in later cases decided within the agency. The hearing decisions, although not binding on other ALJs, are often submitted at hearings as "persuasive" authority to show what another ALJ decided when confronted with similar issues.
On the practical level, benefits specialists and advocates who are dealing with SSA's claims representatives on issues related to benefits and work should plan on referencing the POMS manual more than anything else. The POMS should be readily available to all claims representatives and will be used as the guide for more than 95 percent of their decisions. Occasionally, you may reference an SSR when there is a published SSR dealing with the issue in question.
Emergency messages (EMs) are often used by SSA to communicate major new policies to its employees when no regulations or POMS provisions have yet been published. For example, the only written policies on the expedited reinstatement provisions, when they first became effective in January 2001, were circulated as an EM. Program circulars often serve a similar purpose. Because EMs and program circulars are not officially published and rarely appear on SSA's website, attorneys and advocates tend to find out about them through contacts at SSA or through their SSA-funded regional technical assistance and training centers.
You should use SSA's regulations to make your point with a claims representative when the answer does not appear in the POMS. If an issue can only be resolved by reference to federal law or case law, the decision to rely on that source of authority, rather than the POMS, would probably have to be made by an SSA employee in a supervisory capacity.
PABSS attorneys and advocates who represent individuals in appeals before administrative law judges (ALJs) will find that this is the first time that federal law and regulations are regularly used by the decision maker. In fact, the POMS and other secondary authority, referenced above, will not be binding on the ALJs but should be relied upon when they support your case.
2. State Vocational Rehabilitation Agencies
Primary authority includes: Title I of the federal Rehabilitation Act, 29 U.S.C. § 701 et seq.; the federal Rehabilitation Services Administration (RSA) regulations, 34 C.F.R. Part 361; your state law and regulations. Secondary authority includes: RSA policy statements, your state=s vocational rehabilitation (VR) policy manual, and administrative hearing decisions.
Based on discussions with advocates from around the country, it is safe to say that the VR program or programs vary from state to state in the way they are run. However, you can expect your VR agency or agencies to have published both state VR regulations and something like a policy manual to govern counselor decision making. In our experience, the federal regulations and RSA policy letters only become important when a case goes into appeal or if you are discussing policy at a higher level within the state agency. This practice may vary from state to state.
3. Special Education
Primary authority includes: the federal Individuals with Disabilities Education Act (IDEA), 20 U.S.C. § 1401 et seq.; the U.S. Department of Education regulations, 34 C.F.R. Part 300; your state special education laws and regulations. Secondary authority includes: the various policy letters regularly issued by the U.S. Department of Education; policy manuals used by your state educational agency; administrative decisions of your state educational agency; hearing decisions issued by ALJs or hearing officers.
4. Medicaid
Primary authority includes: title 19 of the Social Security Act, 42 U.S.C. § 1396 et seq.; the federal Medicaid regulations, 42 C.F.R. Part 440; state law and regulations. Secondary authority includes: on the federal level, the Centers for Medicare and Medicaid Services (CMS) policy letters and the State Medicaid Manual; on a state level, the Medicaid policy manual, policy memos, and fair hearing decisions. NOTE: While fair hearing decisions are classified as secondary authority, the state Medicaid agency is, arguably, bound to follow these decisions in later cases as to do otherwise would violate the federal mandate that the Medicaid agency have a uniform statewide program.
C. The Legal and the Practical
1. Federal vs. state law or regulation
Legal. Under the federal supremacy clause (U.S. Constitution), federal law (both statutes and regulations) will always prevail over inconsistent state law provisions.
Practical. Generally, these arguments only work if you are in court or if an attorney is negotiating at the highest levels of an agency, having threatened to go to court. When dealing with state and local bureaucrats or ALJs you can expect them to only be interested in state laws and regulations. It is also likely that a state ALJ will not have authority to rely on federal laws or regulations to overrule a clear mandate in a state law or regulation. If your state law and regulations are silent on an issue, or if there are conflicting provisions within state laws or regulations, the state bureaucrat or ALJ is more likely to pay attention to the federal law.
2. Primary vs. secondary authority
Legal. When arguing your point, always start with primary authority, i.e., law and regulations. Then go to secondary authority, i.e., policies, etc.
Practical. When advocating at the agency level (i.e., with a local SSA office, with a local Medicaid agency), agency policy manuals are usually what the decision makers will rely upon. For example, with SSA the POMS manual is the guide for all day-to-day decision making. Most claims representatives will have access to the POMS; few ever consult or have access to the law or regulations. Similarly, most state Medicaid agencies publish extensive policy manuals governing day-to-day decision making. In New York, for example, there are three separate sources of Medicaid policy (other than the law and regulations), including a Medical Assistance Reference Guide, Administrative Directives, and Local Commissioner's Memoranda.
IV. Where Do You Find the Legal Authority for Your Work?
A. The Resources Needed and Those Available Will Depend on Several Factors
1. Your area of focus
If you focus on only one area, such as SSI or Medicaid, you may have the luxury of keeping most of the key research tools within arm's reach or at least within your agency's offices. If you do a little of everything, you may not have the time, space, or budget to obtain and regularly update all the key resources.
2. The size of your agency and agency's budget
It may be cost-effective for a P&A agency with a 40-person advocacy staff to have a full compliment of research materials in an agency library. By contrast, the smaller agency with a four-person advocacy staff may have some more difficult choices to make in terms of how to spend its library budget.
Editorial comment. A PABSS attorney or advocate cannot do effective advocacy without resources for legal research. Similarly, the BPA&O=s benefits specialist will need some basic research tools to perform quality work at an optimal level. At a minimum, all PABSS attorneys and advocates who are responsible for individual cases should have their own computer station with access to email, the internet, and Westlaw (or a comparable program). If the attorney or advocate is working in a specialty practice, strong consideration should be given to the purchase of specialty treatises or loose leaf-type services. For example, if your agency will devote two or more advocates to a primary special education practice, you should consider a subscription to the Individuals with Disabilities Education Law Reports (IDELR).
The BPA&O's benefits specialist's primary focus should always be on SSDI and SSI, including the Medicaid and Medicare eligibility issues that are a part of the body of SSDI and SSI work incentives. As explained below, many of the legal research resources for the benefits specialist's work can be located on SSA's website.
Practical comment. It may not be practical to purchase something like the IDELR, either because it is too expensive or staff does not have time to read it regularly. There are many cost-free or inexpensive ways to maintain a high (if not the highest) level of expertise in an area. As described below, these include: use of treatises, articles, and newsletters prepared by others; bookmarks to good websites; participation in list serves; and contacts with technical assistance and back-up centers.
B. The Conventional Law Library
The classic office law library might include, as hard or soft cover volumes, the key state and federal books which contain state and federal statutes (i.e., laws), regulations, and "reported" court decisions (see sample citation formats, below, if using West's reporters). A growing number of law offices, including P&A agencies, are limiting the size of their libraries as most everything is available (and up-to-date) with Westlaw.
1. Statutes
To own the whole set of either state or federal statutes is both very expensive and might be overkill. Although many individuals, including the author, like the ability to page through a book, access to Westlaw may be sufficient to access the full range of state and federal laws. If your primary areas of practice involved special education and SSI, your office might order only the individual volumes of 20 United States Code (U.S.C.)(special education laws), the 42 U.S.C. volume(s) that include SSI and SSDI, and any state book(s) that contain the relevant state special education laws.
2. Regulations
For day-to-day casework, regulations are the most likely volumes the advocate will want to have within arm's reach. (See discussion of Westlaw, below. Arm's reach might mean through your computer keyboard.) For example, an advocate handling a volume of SSI appeals will regularly consult the Code of Federal Regulations (C.F.R.) and will prefer to have their own hard copy of 20 C.F.R. within arm's reach. (In the author's office, SSI advocates, including benefits specialists who work for a BPA&O project, get a new copy of 20 C.F.R. every two years, knowing that Westlaw is available to access regulatory changes that occur in between volumes.) For those practicing in the special education or vocational rehabilitation areas, your state's regulations (or policy manuals) may be the most important volumes to keep on your bookshelf.
Editorial comment. The benefits specialist, employed by a BPA&O project, should have access to the SSDI and SSI regulations. While not every BPA&O agency will deem it appropriate to purchase a copy of 20 C.F.R. for each benefits specialist, it may be appropriate to have a shared copy at agencies with two or more benefits specialist in the same office. The regulations are also accessible from SSA's website (see discussion at part IV.E.1, below).
3. Court reporters - containing reported decisions
Federal reporters will include the Federal Supplement (e.g., 348 F.Supp. 286), Federal Reporter (e.g., 14 F.3d 368), and Supreme Court Reporter (e.g., 101 S.Ct. 1374). State reporters will include volumes for lower courts, intermediate appellate courts, and the state's highest courts. Often, all of these decisions will be available in one statewide reporter (e.g., the New York Supplement - 416 N.Y.S. 2d 62) or a regional reporter (e.g., the Atlantic Reporter - 66 A.2d 314). Here again, with all of the reported and unreported decisions available on Westlaw, many P&As and other law offices are moving away from keeping these books in an office law library.
4. Additional library volumes
A well-stocked law library may contain any number of additional tools for legal work, including the Federal Register, books containing legislative history, specialized loose-leaf services, and litigation form books. Some resources, like the Federal Register, will be available through free websites; others may be available on Westlaw for an extra charge or an hourly access fee.
C. Special Library Volumes at a P&A Agency
The volumes described below might be contained in an office-wide law library or in the individual office of the attorney or advocate who specializes in the topic.
1. Treatises from commercial vendors
With a limited library budget, selected spending on treatises might be very cost-effective. Here, the word treatise is used loosely to include everything from 600-page commercial volumes to the latest 15-page article that appeared in Clearinghouse Review, a bi-monthly publication of the Sargent Shriver National Center on Poverty Law, www.povertylaw.org. Clearinghouse Review, available to P&As through a special rate negotiated by NAPAS, is highly recommended for any P&A office.
An example of a book from a traditional commercial vendor would be: Goldstein and Tucker, Legal Rights of Persons with Disabilities: An Analysis of Federal Law (LRP Publications), an excellent resource on special education, annually updated through a pocket part. Any number of other quality volumes are available on special education law, Social Security, and the Americans with Disabilities Act, for example.
2. Books, articles, and policy briefs from the public sector network
Many excellent resources are available through the three regional technical assistance and training centers, Virginia Commonwealth University, the University of Missouri-Columbia, and Cornell University, funded by SSA to support the work of BPA&O and PABSS programs. Likewise, national organizations or back-up centers, like the National Health Law Project, the National Senior Citizens Law Center, and the Center on Law and Education, have produced many excellent resources. Many of these volumes are either free or reasonably priced for what you get. An increasing number of these resources are available on the web sites of these organizations (see Selected Web Sites, part IV.E, below).
For BPA&O or PABSS staff, the first place to look for these resources is through the SSA-funded regional technical assistance centers. For example, Cornell University's Program on Employment and Disability, through its Northeast Work Incentives Training and Technical Assistance Center, has published a two-volume manual that is used to deliver the five-day training program required for all new BPA&O benefits specialists and PABSS attorneys and advocates. The Cornell manual, Benefits Planning, Assistance and Outreach: Supporting Career Development and Employment for Individuals with Disabilities, is updated annually and can be accessed through Cornell's website. Cornell has also published a series of policy and practice briefs, including briefs on the following topics: the State and Federal Vocational Rehabilitation Program, the Transition from School to Work, SSI and SSDI Overpayments, the Ticket to Work, and SSI's Plan for Achieving Self Support. As this is written, 13 policy and practice briefs appear on Cornell's website with additional briefs regularly added to the site.
Two excellent Medicaid treatises are available for purchase through the National Health Law Project (www.healthlaw.org). Both of these are published in a three-ringed binder format and are republished every few years: An Advocate's Guide to the Medicaid Program (2001 ed.); Representing Clients Who Need Medicaid Early and Periodic Screening, Diagnosis and Treatment: A Practice Manual for the National Association of Protection and Advocacy Systems (2001 ed.)(the "EPSDT manual").
3. Loose-leaf services
Many of the commercial publishers produce extensive resource materials in three-ringed binder formats that are constantly updated, in some cases as often as every two weeks. For example, in the special education area, the priority purchase (if your agency does lots of this work) is the Individuals with Disabilities Education Law Reports which is updated approximately twice per month. It allows you to keep up with: changes in law and regulation, case law (including cases reported no place else), state educational agency and local educational agency decisions (typically reported no place else), and policy statements issued by the U.S. Department of Education.
D. Westlaw (www.westlaw.com)
This is an internet-based research service available through paid subscription. If you plan to use this service, you must be aware of what your subscription covers (flat fee or hourly) and what data bases will be billed on an hourly basis. With the excellent pricing for Westlaw available through NAPAS, this has become a very affordable resource for P&A agencies. In the author's experience, nearly all of the research tools described in this practical discussion are covered under the basic flat fee plan available through NAPAS.
Westlaw offers access to all the key published resources to support a typical P&A practice, including: federal and state statutes or laws, federal and state regulations, the federal register, and reported and unreported court decisions. This service also allows the user to: find court decisions by searching under a party name; determine the "history" of a case, to determine what lower courts have said, whether a decision has been affirmed or overruled, etc.; and "shepardize" a court decision, statute, or regulation to determine if federal or state court decisions have followed an earlier decision, or interpreted a law or regulation. While many other services are available through Westlaw, the core services discussed are the most important ones in most P&A practices.
E. Selected web sites
Most federal or state benefit programs, like those referenced in this handout, will be covered by both government and advocacy group web sites. A growing number of these government web sites now contain the laws, regulations, and policy manuals that govern the programs. Some of the advocacy group web sites will include summaries of the programs, updates on new laws or regulations governing the programs, updates on court decisions interpreting the program's mandates, and other resource materials. BPA&O and PABSS advocates will want to bookmark many of these sites on your favorites list for later access.
1. SSI and SSDI
SSA's website is one of the most useful and easy to navigate of all federal agency sites. There are three key links that readers should become familiar with:
Several advocacy group sites are very good resources:
2. Special education
The U.S. Department of Education's agency-wide website, www.ed.gov/index.jsp, is probably too broad in its scope to be useful to most advocates. Similarly, the website of the Office of Special Education and Rehabilitation Services (OSERS), the agency that oversees the Office of Special Education Programs and the Rehabilitation Services Administration, www.ed.gov/about/offices/list/osers/index.html, is also too broad in scope to be useful to most advocates. Rather, advocates will want to look at two sites as the starting point for their work:
Numerous advocacy agencies maintain useful sites to support the work of advocates. Here are two that advocates will find helpful:
3. Vocational rehabilitation
On a federal level, state vocational rehabilitation agencies are overseen by the Rehabilitation Services Administration (RSA), a part of OSERS within the Department of Education. Advocates will want to check out these two sites:
The author is not aware of a comprehensive advocacy-based site comparable to those that exist for the other benefit programs referenced in this article. The sites for Neighborhood Legal Services (www.nls.org) and its National Assistive Technology Advocacy Project (www.nls.org/natmain.htm) contain a number of good resources to support VR advocates, including a comprehensive article/booklet, links to policy and practice briefs published through Cornell University, several newsletters, and selected training handouts.
4. Medicaid
The federal Centers for Medicare and Medicaid Services (CMS), which oversees Medicaid, has three sites which advocates will want to check out:
Most state Medicaid agencies now have web sites. You can probably locate your state's site by doing a search by the agency's name with one of the popular internet search engines like Google www.google.com or Alta Vista www.altavista.com
.
Many good advocacy group sites exist to support the advocate's work. The following are two that the reader will want to check out:
F. Using List Serves as a Research Tool
A list serve, usually set up by a specialty topic, allows an individual to communicate with an entire network of individuals by posting a message to the list serve address. It can be described as a virtual discussion group in which members of the group can respond to inquiries at their leisure, often providing either file attachments or links to web-based resources to help support the work of the person posting the inquiry.
Although a long discussion of the benefits of the list serve is beyond the scope of this article, readers may want to take note that some very useful list serves are maintained by the NAPAS, including a PABSS list serve, a Client Assistance Program list serve, and a special education list serve as relevant to the topics discussed in this article.
G. Using National and Regional Technical Assistance and Back-Up Centers
1. Regional technical assistance projects funded by SSA
SSA funds three regional technical assistance and training projects to serve the needs of the advocacy staff employed by the BPA&O and PABSS programs:
These projects were awarded grants by SSA to provide comprehensive training and technical assistance to both BPA&O and PABSS programs in three regions of the country. Each project will have a designated person to provide technical assistance in your state. Each of the projects has either created or can identify written resource materials for use by advocates, including articles such as this policy and practice brief.
2. National Back-Up Centers
Many national back-up centers exist that can be useful sources of information and support for attorneys and advocates employed by PABSS programs. When doing legal research, the back-up center's resources (by phone, email, web site, publications) are often a good starting point. The following is an alphabetical and representative list of national back-up centers. We will not separately list state specific back-up centers, although some of those may be of more immediate value depending on the nature of your work. Web site and telephone information are provided for each. Because PABSS work can extend well beyond the four benefit programs featured in this article, we have provided a more extensive list:
Some of these organizations were described in earlier parts of the article. For others, the reader should check the web sites for a full description of the agency's services.
G. Using Law Libraries Outside Your Agency
Despite the availability of so many resources on web sites, the PABSS attorney or advocate (and to a much less degree, the BPA&O benefits specialist) will want to access a traditional law library from time to time. Since most P&As will have limited hard copy volumes in their law libraries, it is helpful to know what other resources might exist in your community or state.
The following is a list of key sources of law libraries that may be available to the reader. Some of the resources listed may be the only local or regional source for some volumes that could be needed in your work. If in doubt, call ahead so you do not waste a trip. While you are at it, ask if they have any online resources you can use without making the trip:
One note of caution: Always be wary concerning whether other entities keep their law library materials updated.
V. Application of Research Skills Through a Case Scenario
This part of the policy and practice brief is designed to provide a practical application of the research skills that are summarized above. To get maximum practical benefit the reader is urged to walk through the steps outlined below. Keep in mind that over time some the website addresses may change.
All of the issues that come up in the hypothetical case are relevant to the work that goes on in a BPA&O or PABSS project. While some of the issues might not meet the criteria for a "case" under one or the other project (depending, of course, on what additional facts get added to the scenario), all issues can be expected to come up in the course of your work as information and referral issues, or as questions that are presented when you are doing outreach and training. For purposes of this exercise, we will assume this scenario takes place in a P&A office and involves a PABSS advocate.
A. Case Scenario, Part I
1. The initial SSI questions
Myron Edwards is 17 and lives with his mother, father, and 15 year old brother in Any State, USA. Myron injured his spinal cord when he was seven years old. As a result, Myron is quadriplegic. His brother does not have a disability.
The Edwards' family income is $30,000 per year (about $2,500 gross per month) which Mrs. Edwards makes from a part-time job as a physical therapist. Mr. Edwards was successfully employed as a chef until two years ago when he suffered a back injury. After unsuccessfully attempting other work, Mr. Edwards stopped working about nine months ago and applied for SSDI. His SSDI application was denied and has been appealed. Mr. Edwards has received short-term disability benefits through a state program, but those benefits ran out about three months ago.
You are meeting with Myron and his parents in May 2004. You learn that Myron will not be 18 until April 2005. He will graduate from high school in June 2005. Myron and his parents pose the following questions:
2. Researching the initial SSI questions
Ask around the office: Don't overlook the expertise you may have just down the hall. You ask your co-workers and nobody has an answer. At this point, your next contact should probably be to your designated technical assistance person at the SSA-funded technical assistance project for your region. To illustrate the multiple methods for researching the issues, we will assume this person was not immediately available because he or she is presently doing training for new BPA&O and PABSS staff.
Posting on PABSS list serve: This list serve, run by NAPAS, includes attorneys and advocates who are representing SSI and SSDI beneficiaries who are encountering barriers to work. You post the information about Myron's case and the family's question and ask if anyone has any answers:
B. Case Scenario, Part II: Additional SSI Questions, a Medicaid Question
1. The questions posed by Myron and his parents
Mrs. Edwards is aware that the family is required to have limited resources if Myron is to qualify for SSI. Although they only have $374 in savings, no stocks, no bonds, and no retirement accounts, they do have a 2004 minivan that was specially modified to allow Myron to ride in it, from a wheelchair, as a passenger. (If Myron gets his driver's license, additional modifications would have to be done to the van for him to drive it.) This van with its modifications was purchased by Myron's grandparents last year at a total cost of $27,000 and the van is still probably worth more than $24,000.
You also learn that Myron has a summer job lined up for July and August, working for a state agency. He will make $1,000 gross each month. Myron asks whether that would affect his SSI eligibility after he is approved. Finally, the family has been hearing conflicting information about Medicaid eligibility and whether it will be automatic when Myron is approved for SSI.
Myron and his family now pose the following additional questions:
2. Case Scenario, Part II: Researching the issues
Ask around the office: Once again, you walk down the hall and present these questions to the attorney who always seems to know a little about everything. She doesn't know the answers, but provides you with two things: an old copy of 20 C.F.R. from 1999, containing the SSI regulations; the booklet, Work Incentives for Persons with Disabilities Under the Social Security and SSI Programs, published in August 2002 through the National Assistive Technology Advocacy Project. She also tells you might be able to find some answers on the Social Security website: www.socialsecurity.gov.
You look in 20 C.F.R: Remember, your first mission is to determine if the van affects Myron's SSI eligibility. NOTE: It is OK to look at dated resources as a starting point for research. Keep in mind that anything you learn must be verified as current.
You go back to 20 C.F.R.: Now, you are looking for rules on how the SSI program will treat income from Myron's summer job.
- Using the "find" function, you type in 20 C.F.R. 416.1112 as your search terms.
- Good thing you did this. The current regulation, 20 C.F.R. § 416.1112(c)(3), shows that the student exclusion rule changed in 2001 and increased from $400 per month to $1,290 per month.
- The new regulation provides for cost-of-living adjustments each year, beginning in calendar year 2002, but does not list the current, 2004 student exclusion amounts.
- You now go to the Social Security website
: www.socialsecurity.gov- Using the site's search function, you type in: "2004 student exclusion"
- One of the first listings on the search results, takes you to a Fact Sheet (www.ssa.gov/OACT/COLA/studentEIE.html) that lists the 2004 student exclusion amounts based on cost of living increases.
- You make a note that the 2004 rule excludes the first $1,370 per month of a student's gross wages, up to a yearly maximum of $5,520 per year.
- This is even better news for Myron!
You stay on SSA's website: Now you are looking to see if Myron will be eligible for Medicaid. At this point, we will assume that your PABSS program is located in Idaho.
C. Case Scenario, Part III: Additional Medicaid Questions
1. What about Medicaid funding for a standing power wheelchair?
Myron's mother calls back two weeks later with some additional Medicaid questions. They are still awaiting official word on the SSI application, but have been assured that it will be approved and that Myron will be eligible for Medicaid. She explains that Myron's power wheelchair is now five years old and will need to be replaced soon.
The therapy team that is working with Myron is recommending that he receive a power wheelchair with a power standing mechanism on it. They have explained to Myron and his parents that the standing function can replace the passive standing that he has been doing with a standing frame, assisted by two adults. The medical benefits that have been achieved through the standing frame (e.g., better circulation, prevention of decubitus ulcers, less incidence of muscle and bone mass atrophy) can now be achieved through the standing mechanism on the wheelchair without any help from others. Upon further discussion, you learn that the standing power wheelchair will cost $19,000 and that the state's Medicaid program has never paid for this kind of wheelchair.
Myron's mother asks about the likelihood that the Medicaid program will approve funding for a standing power wheelchair when the standing mechanism adds $8,000 to the cost?
2. Researching the additional Medicaid questions
Ask around the office: Once again, you go to that experienced attorney in your office who seems to know a little about everything. She explains that you are now raising an assistive technology (AT) issue and suggests that you call a certain attorney who specializes in AT issues and works in your agency's other office.
D. Case Scenario, Part IV: Eligibility for State Vocational Rehabilitation (VR) Agency Services
1. VR eligibility questions
It is now January 2005 and Mrs. Edwards and Myron are meeting with you. Myron has just been accepted at the local state university to begin classes in September 2005. He has no idea how he will be able to pay for the college tuition.
The Edwards family has heard about your state VR agency. They have learned that the VR agency will pay for college, but that it will continue to count the income and resources of the parents while the individual remains a dependent. The Edwards family resources are about to go up as Mr. Edwards' SSDI claim was just approved. However, all of the back benefits will be needed just to get the family out of debt and prevent bankruptcy.
Myron and his mother pose two questions:
2. Researching the issues
This time when you consult the attorney down the hall, she suggests that you look on the Neighborhood Legal Services (NLS) website as she believes there is information there about the obligations of state VR agencies.
Using the research tools and strategies, as outlined in this article, you have been able to provide Myron and his parents timely and accurate information. In the future, as a PABSS attorney or advocate, you can use these same tools or strategies if one of these issues turns into a denial of services with the need for representation in an administrative hearing or in litigation. Similarly, if you are a BPA&O benefits specialist you can use these same tools and strategies in the future if you are providing ongoing benefits planning services to Myron.
VI. Conclusion
This policy and practice brief has provided a comprehensive, yet practical summary of the many tools now available to do legal research in a BPA&O or PABSS practice. To fully benefit from the brief, the reader is encouraged to set aside some time or times to view the many websites that are included and to walk through the simulated research exercise.
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